ext_159444 ([identity profile] aronal.livejournal.com) wrote in [personal profile] phoenix_arose 2012-09-27 03:50 pm (UTC)

"If one of my co-workers was alcoholic and came in drunk or hung over all the time because they made choices to "have fun" the day before, I'd not feel too odd if they were fired."

You have great perspective on your situation and a very mature outlook. It pains me that you are so young and short of some miracle cure you may be dealing with this for the rest of your life.

My stepmother has Lupus, when she was diagnosed 30 years ago the life expectancy was about 2 years. Thirty years later she is still grinding along. She has refused to file for disbility even though she has not contributed finacially to their household income for many years. Her pride refuses to admit that she is disabled. As much as I get angry at her for running through my father's savings and retirement funds, I do admire her for refusing to give up and go on the dole.

Then again she isn't trying to raise a child.

You have to think of not only what is best for yourself, but what is best for your family. Could you get by on disability and Jame's income? Would the extra time you spend with Aiden and pacing yourself for all the things that need to be done around the house be more valuable in the long run than working at the fruit bowl?

Sorry I don't have answer for you, the invisible disease thing is so hard to relate to for anyone not in it at the moment. You have my support and sympathy, let me know if there is anything else I can do to help.


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